Living with a child with special needs 

Every morning when I wake up ready for the day not knowing what mood courtney will be in as we get good days and bad days with her.

One of the things that breaks my heart is that courtney struggles to communicate her emotions , so it’s sometimes harder for me to get her to open about her feelings. Something that she does find helpful is a emotion chart which we have on our fridge , so when she needs to open up to me about how’s she’s feeling she will point to the picture emotion. 

One thing about Courtney is she a very outgoing bubbly and chatty girl so when u meet her u wouldn’t think she had any additional needs. So she kind of masks her difficulties.

Courtney will soon be 10 years old and is starting to see how different she is to other children. She see things they can do that she can’t like a simple thing like riding a bike we have tried lots with Courtney to ride a bike but her coordination difficulties make this really hard for her. 

Courtney has two younger brothers and she is really good with them. But she does also like to be alone she can play schools in her room for hours 🤗

Sometimes u have to tiptoe around courtney, especially when it comes to the other children wanting or needing something. For example jack got to cook for his school homework and I was discussing this with him when courtney got so frustrated and upset because she thought she was missing out even though she can do it with us.

Rountine is very important to courtney if u skip one little thing she gets cross so we use a visual timetable most days. 

Courtney does well at school. Although sometimes she comes home crying as she worries when she hasn’t finished her work even though the teacher tells her she can finish it then next day courtney doesn’t understand that she can. Her levels at school are about the same as a 5 year old, she can read a little but her main struggle is wriittng , she enjoys maths. She tries really hard at school and she really enjoys it. 

As a baby Courtney wasn’t a good sleeper she be awake all night and sleep all day but I guess that’s normal for a newborn. But from the age of one she’s been a brilliant sleeper no problem at all. 

Eating wise courtney was a very fussy eater she wouldn’t try new foods and she didn’t like any solid food. She had problems digesting food so she was on medication , she also had lactofree milk for few years. Now age 9 she’s a good eater and wil try most things 
Soon the next chapter for Courtney will be going to secoundary school, so far finding a school hasn’t been easy but my focus for the next few weeks is to view some more and find the right one for her and her needs. We viewed a few last year for her but they didn’t feel like the right one for her. So hopefully I will have good news regarding schools next time i do another blog so fingers crossed.


The day I met my baby girl 

18th April 2007

At 7.19 pm I finally got to meet my baby girl I remember the night like it was yesterday it was one of the best days of my life she weighed 5pound8 I named her Courtney Beverley carol Brown she was beautiful 

The first few weeks being a mum 

I loved every minute of being a mum although it was hard sometimes courtney slept all day and was awake most nights but by the age of one she was settled in to a rountine and those sleepless nights were a distant memory. I enjoyed walks with her in her pram showing her off to family and people that stopped to look at her she was so beautiful

Hitting milestones

Courtney never crawled she bum shuffled at the time we didn’t think anything of it as we thought she would crawl in her own time 

Then she got to the age where people would ask is she walking ? Is she talking ? Does she do this does she do that ? Courtney didn’t walk until she was 18 months we just assumed she found it easy to get around by bum shuffling

But once she hit two years old she started nursery and that is when her speech delay was obvious her key worker was worried courtney was only saying mum and dad she started to use sign language that courtney managed to get the hang of Straight away 

Courtney had speech therapy at home and at nursery and made tiny steps socially she was a social butterfly no problems at all even though she couldn’t communicate as much as the other children 

Starting school 

Courtney was being assessed by lots of different people at this point so we had to find a school for her for the time being we picked one quite close to home she had speech therapy there everyday but really struggled with the basics of mainstream school , she found it hard and was so anxious she had wet herself everyday at this school 

Getting a Diagnosis and a new school 

We finally got a diagnosis for courtney she has dyspraxia , speech delay and learning difficulties 

We was offered a place at a speech and language unit that’s a hour away from our home but for courtneys needs it was the best option 

Within a year of being at that school she improved so much , getting much more help and her needs we’re being met she loves it and is settled 

Next step secoundary schools 

Our next step is to look at  secoundary schools which so far we have found hard we want to find the best one for her so my next blog will be about finding the right secoundary school for Courtney .